MRCC Structure

MRCC Oversight Board

The purpose of the Oversight Board is to govern the MRCC effectively and, in doing so, to build public and stakeholder confidence that their health and healthcare is in safe hands.

Jane Eddleston – Oversight Board Chair

Professor Eddleston is a Consultant in Intensive Care Medicine and Anaesthesia at the Manchester Royal Infirmary and is the Group Joint Medical Director for MFT. She is the Clinical Chair of the Greater Manchester Critical Care Operational Delivery Network and a member of the Faculty Board for Intensive Care Medicine. She has extensive Clinical and Managerial experience in Critical Care and Acute Care and is the Chair of the Clinical Reference Group for Adult Critical Care.

MRCC Oversight Board Members:

Charlotte Skitterall, Celia Hogan – Infectious Diseases Consultant, David Kay – SM MCS Director of Finance, Dr Fiona Lalloo – Clinical Head of Department Genetics, Dr Iain McLean – Managing Director of Research and Innovation, Dr Katherine Boylan – MFT Director of Innovation, Dr Rachael Barber – RMCH Medical Director, Dr Sarah Vause – SM MCS Medical Director, Emma Gilbey – Programme Director for Long Term Conditions Manchester LCO, Helen Ibbott – LCOs Director of Strategy, Helen Roberts – MFT CSS Associate Director of Integration and Transformation, Ian Daniels – SM MCS Director of Business and Innovation, Jennifer Hughes – Deputy Director of Transformation NMGH, Jonathan Simpson – MRI Medical Director, Julia Birchall-Searle – RMCH Director of Nursing, Kashif Haque – MFT Director of Change, Innovation and Improvement, Prof Matthew Makin – NMGH Medical Director, Prof Michael Pemberton – Medical Director University Dental Hospital Manchester, Nichola Garde – BBC Creative Diversity and Disability Lead and Patient Representative, Prof Bill Newman – Clinical Director NW GMSA, Prof Indi Banerjee – RMCH Associate Medical Director, Prof Jane Eddleston – Group Medical Director, Dr Richard Body – Director of Research and Innovation, Rachel Ingham – Divisional Director Genomics, Dr Sarah O’Shea – Medical Director CSS, Dr Sohail Munshi – LCOs Chief Medical Officer, Stephen Dickson – RMCH Chief Executive Officer, Stuart Moore – Director of Strategic Planning MRI, Tom Rafferty – MFT Director of Strategy.

MRCC Advisory Panel

The advisory panel provides a non-executive advisory function to the Manchester Rare Conditions Centre (MRCC).

Members help to guide the MRCC strategy, projects, and programs. Membership is reviewed every two years to ensure that the Panel’s expertise is relevant to the changing priorities of the MRCC.

Advisory panel members:

Prof Angela Davies – University of Manchester, Angela Rowe – MFT Charities, Dr Catherine Breen – MFT Clinical Geneticist, Dr Iain McLean – Managing Director of Research and Innovation, Dr Kate Hillman – Consultant Renal Physician, Dr Lynne Webster – Director of Research Governance and Quality, Dr Rhona MacLeod – Manchester Centre for Genomic Medicine, Elizabeth Coulson – MFT Charities, Fin McNicol – Group Director of Communications, Ian Daniels – SM MCS Director of Business and Innovation, Kathryn Ascroft – Group Strategy Manager, Katie Lees – Senior Development Officer University of Manchester, Laura De Peyer – Senior Philanthropy Manager University of Manchester Nichola Garde – BBC Creative Diversity and Disability Lead and Patient Representative, Prof Bill Newman – Clinical Director NW GMSA, Prof Dian Donnai – Manchester Centre for Genomic Medicine, Prof Graeme Black – Manchester Centre for Genomic Medicine, Prof Indi Banerjee – RMCH Associate Medical Director, Prof Ray O’Keefe – University of Manchester, Rachel Isherwood – Philanthropy Manager University of Manchester, Rachael Faulkner – Clinical Psychologist Manchester Centre for Genomic Medicine, Sarah Wynn – CEO Unique, Scott Noble – WTWA Strategy Manager, Sue Baker – Rare Care Centre Perth Children’s Hospital, Tanya Hamid – MFT Director of Charity, Tom Rafferty – MFT Director of Strategy, Victoria Grant – Manchester Museum, Videha Sharma – University of Manchester

We R Rare

The We R Rare Steering Group consists of 11 patients, carers and family members who have direct experience of rare conditions across Manchester and North West England. The aims of the group is to

Shape the research, services, and support available to people living with rare conditions.

Provide strategic advice to the Manchester Rare Conditions Centre and the Manchester Biomedical Research Centre.

Influence the latest research projects for discovering, studying, and treating rare conditions.

Raise awareness of rare conditions and the challenges faced by those living with them.

Sinduja Manohar from Vocal is the We R Rare Engagement and Involvement Specialist.