Rare Disease Collaborative Networks

Rare Disease Collaborative Networks (RDCNs) are national partnerships established by NHS England to improve care for people living with rare and ultra-rare conditions. These networks bring together expert centres that offer clinical excellence and are engaged in active research. By connecting specialists across the country, RDCNs ensure that knowledge and expertise are shared, helping to standardise care and improve patient outcomes regardless of geography.

These networks support the broader goals of the UK Rare Diseases Framework by improving diagnosis, care coordination, and equity of access. They also complement services like genomic testing and European Reference Networks, helping to bring cutting-edge diagnostics and treatments to NHS patients.

Manchester University NHS Foundation Trust plays a key role in several RDCNs, reflecting its strengths in rare disease care and research. The Trust is currently part of the following networks:

  • Ectodermal Dysplasia
  • Blooms Syndrome 
  • Hereditary Gastrointestinal Polyposis Syndromes 
  • Segmental Overgrowth and Vascular Malformations 
  • Tuberous Sclerosis Complex
  • White Matter Diseases 
  • Adult Rare Bone Disease