The Manchester Rare Conditions Centre is a virtual platform with the vision to improve the lives of people and families living with rare conditions.
Our mission is to improve the lives of people and families living with rare conditions.
Our vision is to create an exemplar network of healthcare services in Manchester for people and families living with rare conditions, to support development of infrastructure and capacity in Manchester that can enable significant research and innovation breakthroughs in the field, to contribute towards development of workforce fit for delivering the services and breakthroughs, to facilitate engagement between relevant stakeholders in the field, to catalyse a compassionate empowered community for people and families living with rare conditions and share models of care with other care givers nationally and internationally.
The MRCC has 10 focus areas under 4 themes:
Clinical & Diagnostics
(1) Development of new RCs clinical services in Manchester
(2) Establish a Manchester RCs clinical services excellence network
(3) Support development of new diagnostic services for RCs in the North West
Research & Innovation
(4) Support RCs related research programmes in Manchester
(5) Leverage data, digital and devices for RCs work in the region
(6) Establishment of new RCs research fellowships
Education & Training
(7) Deliver world-class RCs educational and professional development programmes
(8) Create excellent professional networking opportunities
Engagement & Advocacy
(9) Advance awareness and advocacy for individuals and families living with RCs
(10) Partner and collaborate with diverse range of organisations
