We are pleased to share that a new database of UK patient organisations for rare conditions is now live.
The project was created to address the lack of a comprehensive, accessible resource bringing together organisations supporting people affected by rare conditions across the UK.
We are delighted that around 50 patient organisations have already taken part.
Explore the database by following this link:
We want the database to keep growing and improving. If your organisation is not yet represented, we’d love to hear from you. If you’re already involved, please help us spread the word and suggest other organisations. The more organisations that take part, the more useful and representative this resource will become.
A huge thank you to all the patient organisations that have supported the project so far and helped us reach this milestone.
