We R Rare Steering Group Meeting – May 2025

Date and Time: Tuesday 27th May 2025 6.00 – 8.00pm 

Venue: Online –Zoom

Aims of the meeting: 

  • Share Patient and Family Involvement section of Trial Readiness Toolkit 
  • Discuss actions to be taken forward to reflect on feedback provided (in March 2025 meeting) 
  • Provide update on projects shaped by We R Rare Steering Group