Date and Time: Tuesday 21st May 2024 6.00 – 8.00pm
Venue: Online –Zoom
Aims of the meeting:
- Gain initial views on project – developing patient reported outcomes (PROs) and patient reported outcome measures (PROMs) in clinical trials on rare conditions
- Shape protocol by sharing views on acceptability, recruitment messages and any potential areas of concern
- Begin discussion on priorities for We R Rare Steering Group