We R Rare Steering Group Meeting – July 2025

Date and Time: Wednesday 9th July 2025 6.00 – 8.00pm 

Venue: Online – Zoom 

Aims of the meeting: 

  • Understand priorities and start to shape future work into Acute-Onset Axonal Neuropathy 
  • Standing agenda item – Update on projects shaped by We R Rare Steering Group 
  • Updates on existing and upcoming work in rare conditions