We will be running a couple of discussion sessions over the coming months with families affected by rare lower urinary tract conditions. There will be separate sessions for parents / carers (of a child of any age) and sessions for 11-18 year olds. These sessions will be chaired by engagement specialists from our charity partners, ERIC (The Children’s Bowel and Bladder Charity) and Vocal, to ensure discussions are inclusive, accessible, and reflect families’ experiences.
The discussion sessions will focus on:
- Improving understanding of patient and family experiences across the care pathway.
- Identifying and prioritising research questions that matter most to families.
- Strengthening partnerships with families and grow their engagement and involvement across our research.
Please see the flyer below for instructions on how to register your interest by Monday 20th April 2026 if you are a patient or family member who:
- Has lived experience of rare lower urinary tract conditions
- Is happy in sharing their views in small groups with other families
- Has an interest in research
