MRCC Launch Event – June 2022

July 18th 2022

The Manchester Rare Conditions Centre held a launch event on the 29th of June 2022. Many thanks to everyone who attended and made the event memorable.

We R Rare

“We R Rare” is the name for the MRCC’s public involvement group. We R Rare is a vehicle for creating meaningful change. It brings together members of the public, carers, and representatives from voluntary organisations and local groups, to involve local people in the design and commissioning of local health services.

Advisory Panel

The Advisory Panel and its members provide the MRCC with advice on the strategy, project and programmes we deliver. A big thank you to all who attended the first Panel meeting in December 2022

Jane Eddleston