Strategy

The MRCC aligns with local and national strategies to enhance diagnosis, treatment, and support services for patients with rare conditions

National Strategies

The MRCC is  leading the way nationally within the context of several recent strategic developments, including:

• The 2018 UK Strategy for Rare Diseases
• The 2020 UK Rare Disease Framework
• The 2023 England Rare Disease Action Plan

Mission

To improve the lives of people and families with rare conditions

Strategic aims

• Advance diagnosis and co-ordination of care for individuals with rare conditions
• Enhance treatments and research capacity for rare conditions
• Progress awareness and advocacy for individuals with  rare conditions

Vision

Comprehensive streamlined diagnosis, care, treatment, and support for people and families living with rare conditions.